Sunday, October 13, 2013

What is PKD?




Polycystic kidney disease (PKD) is a disorder in which clusters of cysts develop primarily within your kidneys. Cysts are noncancerous round sacs containing water-like fluid.
Polycystic kidney disease isn't limited to your kidneys, although the kidneys usually are the most severely affected organs. The disease can cause cysts to develop in your liver and elsewhere in your body.
A common complication of polycystic kidney disease is high blood pressure. Kidney failure is another common problem for people with polycystic kidney disease.
Polycystic kidney disease varies greatly in its severity, and some complications are preventable. Lifestyle changes and medical treatments may help reduce damage to your kidneys from complications, such as high blood pressure.  (The Mayo Clinic)

The Bucket List


There is something about being told by a doctor that you have to put "limits" on your life that makes you want to rip the limits off and do those things you have always wanted to do but haven't.  

I have known for about 11 years that I have polycystic kidney disease.  It wasn't until I lost over a hundred pounds did I realize how my kidneys had grown over that time.  After many, many tests, it seems that they aren't as bad as we thought they could be because of their size (about 10 lbs).  They are working pretty good.  Although, I still only have about 5 years + or - before I have to think about dialysis or transplantation.  5 years, though?  I will take it!  During that time, however long it lasts, I have decided to live life to the fullest and to stop putting off all of the things I have always wanted to do.

My motto:  I might have Polycystic Kidney Disease, but it doesn't have me!

So, I decided to put together a list (that I will keep adding to) of things that I want to do in the next five or so years. {in no particular order}

1.   Go skydiving. (Done.  August 24, 2013)
2.   Learn to ride a motorcycle.
3.   Buy a motorcycle.
4.   Go camping alone with Jason and with the family.
5.   Sing with a live band in public.
6.   Have one procedure that is purely cosmetic.
7.   Zip line at The Gorge.
8.   Learn to upholster furniture from a master.
9.   Have a store, pop up store or have a space at a show.
10. Take Sam white water rafting.
11. Take Sam to ride on a real train.
12. Run a 5k.
13. Ride cross country with Jason (on motorcycle) to visit my friends in California.
14. Have a large garden, harvest and can the veggies.
15. Go horseback riding in Western North Carolina with Maddie.
16. Take Sam to the zoo.
17. Have a spa day with the girls (hair, make up, massages, nails).
18. Teach Rin to cook.
19. Visit New York City with Jason.
20. Have some really great family photos made.

And for the BIG ones... ones that might not ever happen, I will make a separate list for 10 years out.

1.  Travel to Africa.
2.  Restore an old farmhouse.
3.  Restore an antique car and use it as a daily driver.
4.  Open a store in a little downtown.
5.  Go shopping in Paris with Lorrie.

Sunday, September 15, 2013

FREE Porch Upgrade!


I wish I had taken better "before" & "during" photos of this upgrade to my front porch.  However, when I did it, I wasn't expecting to post the project.  Thanks to the encouragement from my friend, Zaina, I decided to post some of the tips I used in giving my porch a little make over for NO money! 
My porch was neutral.  When we moved to this house, I used left over things to decorate it.  It was boring and needed some color!  Every day when I walked into the house, I would think to myself, "I really need to do something to this porch!"  
I was recently interviewed for an article in our local newspaper.  The last question I was asked was, "Is there anything else you would like to add?"  My response fits perfectly with this project.  I said, "Great design does not have to cost a lot of money..."   That is so true!  
So, here are a few tips to Update Your Porch for FREE: 
  • Shop your house & use what you have! 
    • If you look around your house or garage, you will be surprised at what you already have laying around or in storage.  Take a walk around your house and collect little things you can use.  Don't worry about the color.  Look at shape and function & make a "pile" of useable items.  I had the three stars hanging on my side/screen porch that no one ever uses.  Ok, that is because I store all of my "to be worked on" furniture out there, but that is not the point! :)
  • Stage before you change!
    • Before you put any "work" into the items you are going to use, stage your porch.  Put all the items where you think you want to use them. Fluff the pillows, move the plants and hang things.  Make sure any items you are going to work on are usable.  So, decide what works and put the rest away. I had some little tins in my craft drawer.  I put all of my plants in them.  Using the same container made them "go together." 
  • Paint!
    • I had some left over paint from a previous project, so that is what I used here {FREE}! Things that normally might not go together can be painted the same color & magically become a family of objects that look hand selected and welcoming.  For example:  Do you see that post in the middle of my plants?  That was a wood and black painted block of decorative wood (maybe off of a fence) that I painted.  I put a plant on top & voila!  And, the stars? I painted just one, the large one, to tie into my decor.

    • My seat covers needed to be reupholstered.  They were dingy and stained from being outside.  With just coat of paint (yes, on fabric!) they look great!
  • Be Creative! 

    • I have had that burlap colored pillow on my porch since we moved here.  Nothing special about it.  Until....  

    • I used my Silhouette to cut out a vinyl sticker that says "Jacobs Nest."  I then pulled the letters out, leaving the negative space.  I applied that "stencil" to the pillow, dapped it with paint & pulled the vinyl off.  I think this is my favorite thing of the day.  Completely custom! {and FREE} 


Put a little thought into it, use your hands & make something fabulous! 

Side Note:  The paint used in this project is Annie Sloan Chalk Paint, Provence.



Saturday, March 2, 2013

The Fat Girl Inside Me


When I was over two hundred and fifty pounds, I used to say, "I am skinny on the inside...." and it was true.  I always felt as if my "real self" was trapped inside of my obese body.  I felt as though I walked through my life, peering out of this shell that didn't match the real me.  I cared as much, if not more, how I looked as all of the skinny, beautiful women.  I never left the house without make up on or without my hair done. I took care of myself. When I went out to dinner with my husband, I wanted to be glamorous and beautiful.  I hoped that people would notice me when I walked into a crowded room.  I believed and would tell myself, "If I could just get this weight off, I could be the woman I have always wanted to be..."

Imagine how surprised I was, after losing over a hundred pounds, when I realized that I still felt the same way!  Only now, I was that fat girl, looking out the window of a smaller, more acceptable body.  I still wanted all of the same things, to be beautiful and glamorous, to be noticed and accepted.  Sure, people notice me now, I am no longer invisible (you plus size girls know what I mean).  I have actually been shocked at the difference in how I get treated in public, the way people acknowledge my presence.  However, the important thing is that the way I felt about myself hadn't changed.  I still felt this need to be more, less, better, just different than what I was, somehow.  I went from feeling like, "If I could just get this weight off..." to "If I could just change {insert any one thing on any given day}, I could be the woman I want to be...."

One day, I was looking at my self in the mirror and Jason walked by.  He asked me, "Why are you looking at yourself like that?"  "Like what?" "Like you are still unhappy with yourself.  You are so beautiful.  You always have been, you always will be...and that has nothing to do with your body."   That statement from my husband, started a change in my heart.  God used those words to start a real transformation in me, the real me, not by shell.

I came to realize that I was never a skinny girl in a fat body and I am not now, a fat girl in a skinny body.  I am just me.  God began a new work in me, changing the inside as drastically as my outside has changed over the past year.

All of these years, I had it all wrong.  I believed that being pretty could change my life.  So, I, as many women do, picked at my skin, criticized my features and used all of that as an excuse not to change the part of me that mattered, really mattered.  Sure, I was a "good" person, I thought.  However, when the weight was gone (and I couldn't use that as an excuse anymore), I had to face the fact that what I saw was ugly and that had nothing to do with what I could see.  I was angry.  I was unforgiving, judgmental and self-righteous.  I didn't love people like I should or hate sin like Christ does.  That is what was making me ugly.  Being fat was just a distraction, something the enemy was using to divert my attention and keep me in bondage.  As long as I was focusing on what was wrong with the way I looked, I wasn't examining my heart, motives or personality.  

You hear people say, "Beauty is only skin deep...."  Friends, that is the problem itself.  We, as a culture, focus so much on "skin deep" beauty that we entirely miss the point.  Real beauty goes to the bone, though the soul and falls out of you without restraint.  

Maybe you aren't fat.  Maybe your breast are smaller than you would like, or your nose is crooked.  Perhaps you have a belly or think you are too skinny.     Maybe your hair is stringy or thinner than would like it to be.  Let me encourage you to let go of all of that, just long enough to allow God to change you on the inside.  

Allow Him to heal you, help you trust again, change you at your core.  Allow godliness to grow inside of you and kindness and love to go before you every where you go.  That is what beauty is.  When you are beautiful on the inside you will see your outside differently, perhaps more accurately to the wonderful creation God made when He designed YOU. 

Today, I am still not the woman I wish to be.  I have more growing and changing to do.  However, today, my prayer is, "God if You will keep changing my heart, I will become the woman You want me to be..."  Today I feel more beautiful than I ever have before and it has nothing to do with the way I look.   That is a happiness and contentment that can only come from God and I am grateful. 





"Oh yes, you shaped me first inside, then out;

    you formed me in my mother’s womb.
I thank you, High God—you’re breathtaking!
    Body and soul, I am marvelously made!
    I worship in adoration—what a creation!
You know me inside and out,
    you know every bone in my body;
You know exactly how I was made, bit by bit,
    how I was sculpted from nothing into something.
Like an open book, you watched me grow from conception to birth;
    all the stages of my life were spread out before you,
The days of my life all prepared
    before I’d even lived one day."


Psalm 139:13-16, The Message